Research Privacy Notice

Plain English explanation

This practice participates in research. We will only agree to participate in any project if there is an agreed clearly defined reason for the research that is likely to benefit healthcare and patients. Such proposals will normally have a consent process, ethics committee approval, and will be in line with the principles of Article 89(1) of GDPR.

Research organisations do not usually approach patients directly but will ask us to make contact with suitable patients to seek their consent. Occasionally research can be authorised under law without the need to obtain consent. This is known as the section 251 arrangement1. We may also use your medical records to carry out research within the practice.

We share information with the following medical research organisations with your explicit consent or when the law allows: National Institute for Health Research and the Royal College of General Practitioners Research and Surveillance centre.

You have the right to object to your identifiable information being used or shared for medical research purposes. Please speak to the practice if you wish to object. 

  • Data Controller contact details: Maywood Surgery, 225 Hawthorn Road, Bognor Regis, West Sussex, PO21 2UW
  • Data Protection Officer contact details: Richard Newell c/o 225 Hawthorn Road, Bognor Regis, West Sussex, PO21 2UW
  • Purpose of the processing: Medical research. 
  • Lawful basis for processing:  Identifiable data will be shared with researchers either with explicit consent or, where the law allows, without consent. The lawful justifications are; Article 6(1)(a) “the data subject has given consent to the processing of his or her personal data for one or more specific purposes” And in addition there are three possible Article 9 justifications. Article 9(2)(a) – ‘the data subject has given explicit consent…’ 
  • Recipient or categories of recipients of the shared data: The data will be shared with National Institute for Health Research and the Royal College of General Practitioners Research and Surveillance centre.
  • Rights to object: You do not have to consent to your data being used for research. You can change your mind and withdraw your consent at any time. Contact the Data Controller or the practice. 
  • Right to access and correct: You have the right to access any identifiable data that is being shared and have any inaccuracies corrected.
  • Retention period: The data will be retained for the period as specified in the specific research protocol(s). 
  • Right to Complain: You have the right to complain to the Information Commissioner’s Office, or calling their helpline Tel: 0303 123 1113 (local rate) or 01625 545 745 (national rate) There are National Offices for Scotland, Northern Ireland and Wales, (see ICO website)

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